DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneAMYLOIDOSISvoice.com | ||
To unsubscribe from these emails, click here |
Trusted Resources: Community Center
Online support, community stories, financial assistance
Seeking Shelter in His Refuge: Finding, Facing and Fighting Amyloidosis
I am grateful to tell the story of my journey in and through the world of hematology and blood dyscrasisas. As I read the plight of so many of my comrades with amyloidosis, to be truthful, I have a bit of survivor’s guilt. Had I not been blessed and guided in the manner that I was, or not had a really dedicated physician pay attention to my subtle signs and symptoms, then perhaps my story would have taken a much more dark and negative course.
Hopefully, I will be a case study or model of hopefulness, attesting to the merits of early detection and diagnosis. Though I will walk you through the journey, please take care to listen for the insights learned along the way for I believe that there is much learning here for both physician and patient.
Share
myBinder
Related Content
-
educationCaregiver Tips: Taking Care of YourselfIn some cases, caring for a loved one wi...
-
news & meetingsMatt Millen, in Remission but Facing More Treatment, Plans TV Return This FallMatt Millen plans to return to the broad...
-
videos & visualsBob David: Coping With Amyloidosis – ASG Webinar 3/6https://www.youtube.com/watch?v=CkBwTpXh...
-
educationAL Amyloidosis Matters: Coping With EmotionsIn this edition we hear from John Hicks ...
-
videos & visualsA Video on Transplant Games by Claire Montourhttps://vimeo.com/305409559...
-
people & placesHereditary Amyloidosis CanadaThe Hereditary Amyloidosis Canada (HAC) ...
-
news & meetingsInotersen: An Exciting Prospect for hATTR Amyloidosis TreatmentA new hereditary ATTR (hATTR) amyloidosi...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.